Tuesday, February 13, 2007

the end

i thought i'd come back and write an ending to my blog for two reasons. one, i just felt a little weird leaving it open ended, i guess i wanted to close out this part of my life. two, i feel like i have the rare migraine success story, and i didn't want to deprive the odd migraine sufferer stumbling across this the hope my story affords.

so. to sum up. i was stuck at home, having to avoid light, noise, and smells, watching movies all day long. i went to the mayo clinic and was hospitalized at jefferson for over a week all without results. but i found my miracle drug. and when drugs work, it truly seems like a miracle. seroquel has given me my life back. i did have a little episode of being bad again and being stuck in my room for a week, but it was only because i accidentally was taking too little medication.

i moved out in january into an awesome apartment with an awesome roommate. we go out to the theater, have dinner parties, and i'm sure will go to many museums. i am interning at my two top choice internships in the world, and they are great, exciting, and career advancing. while my boyfriend is still an hour away (if we were in the same city my life would truly be perfect), he stuck with me through all this and even more crappy things in my life that never made it in here, and is really the perfect boyfriend. basically i couldn't imagine my life being better right now. there's nothing overwhelmingly fantastic happening, things are good. and life being good is a damned nice change. i still have a headache every minute of every day, but seroquel has made it obsolete. aside from small things like not drinking coffee, it's not really a factor in my life anymore.

fellow migraine sufferers: i know the world is full of people whose migraines seem to be destined to ruin their entire lives. i can't express how blessed i feel to have escaped that, and i know i am the exception. but, i exist. i hope the fact that i got through this can help you, even if it just lets you just get through today. if your doctor's bad, find another one. find one who will be aggressive until and past she sees results. i hope medicine advances enough so that this can happen to everyone with migraines.

Friday, December 08, 2006

really better!

i'm sorry i forgot to post. i am declaring myself officially better. life is good, i've been visiting lots of friends, planning on visiting lots more. things are looking good about finding an apartment and a paying internship in january. i'm really excited about my life right now.

Wednesday, November 15, 2006

good thing i didn't declare myself better

a few days ago it started hurting my head to read. i'm still able to galavant around, but not being able to read sucks. my sister contends that it's because i'm depressed, not getting any exercise, and sleeping too much (about 15 hours a day including naps). i'm hoping that's true, but all these things have been true of me for a while (well, i'm sleeping more, but it's up from like 12 hours). siiiiiigh.

Friday, November 10, 2006

it's been a while

i knew i hadn't posted in a while, but i didn't realize it'd been since the 20th. wow. so. i got better. like better better. like i've read a ton of books better (reading is always the hardest thing for me to do with my headache). i'm loathe to declare myself officially in the clear "better" because you know how much i've been up and down, but i think this is the real thing. a few days after my last post i felt better, went to vancouver because my dad works there part of the time, to baltimore to see my boyfriend, and to new haven to vote and see friends. you'd think i'd be ecstatic, and it's really great to be out of the house and seeing people, but i'm pretty overwhelmed by being better. it's like i grew up from 5 to 22 in a day.

Friday, October 20, 2006

on a sadder note

as soon as i got home (actually, on the airplane back) the side effects to the seroquel started. now i've gone down on it but i'm still really out of it. my head seems a lot worse. i'm on a slightly lower dose and i'm still hopeful about this drug, it's just really hard to be back in the house watching tv all day. arg.

Thursday, October 12, 2006


in florida here, being ecstatic. it was pretty incredible going to the airport where previously i'd needed a wheelchair, sunglasses and earplugs, and needing NONE of that. i needed all that (minus the wheelchair) on the flight previously, but not this time. this time i took the noise of the plane plus x-men 3.

i think it's finally sinking in that my head is better, and WOW! joy joy joy joy joy! i woke up this morning and for a few seconds wondered if my headache was gone. PLUS i'm in florida. it's like my dad's conference purposely happened in time for me to celebrate getting better. i read on the beach (!!) today for 40 minutes, no problem, i could have done a fair amount more but it started raining. so i went to the spa :) life is too good.

Tuesday, October 10, 2006

we have SO much to catch up on

wow, i'm not sure i'm awake enough to do this post justice. but i'll try. on friday i went down to see the boyfriend. we went out to dinner on saturday night (it was REALLY good) and when we first got there, we were scoping out the noise level for me, and we explained this to the person who came to seat us, and he was like oh, let me turn down the music. and he turned it off. he's my favorite waiter ever. so anyway, it was quiet and dark at first, but then they turned the music back on, and more people came in, and it got pretty loud. and my head was still fine. and i was like, hmmm...

so the next day, which was very bright, kevin and i went outside. and i was fine without my sunglasses. and then there was a big baltimore parade for columbus day, and MARCHING BANDS went past me and i was FINE!!!


it seems that i'm functional in every way but reading, which has done me in from the start of my headache four years ago. i can read for 50 minutes but it makes my head hurt for the rest of the day, and i can read for 35 minutes no problem. i'm hoping going up on the seroquel will both make my headache go away and let me read. in opposite order than that, because i've had my headache for four years, i'm used to it, i'm even fine with it as long as it doesn't inhibit me.

sooooooOOOOooo my dad the day before asked me if i wanted to go on a business trip with him to florida tomorrow, and i wasn't sure for a while cos i was like, i might be really bored, and he was like, you can be bored here or you can be bored there. and i was like, good point. so now i'm in the middle of packing :) i can't understand what my life is right now. i can't understand being better and i can't understand going to florida.... wow.

hopefully i'll post in florida...!